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Dr. Jennifer Smith

Dr. Jennifer Smith is an expert in patient-centered research at the Rare Disease Research Center, focusing on Duchenne Muscular Dystrophy. She leads projects to enhance patient participation in research, develop participation guidelines, recruit patient participants, and conduct patient-centered research activities. Dr. Smith's work emphasizes the importance of including patients' perspectives in research, ensuring that studies are relevant and beneficial to those affected by Duchenne Muscular Dystrophy. Her collaborative approach involves working closely with patient advocacy groups and families to identify research priorities and design studies that address their needs. Dr. Smith's dedication to patient engagement has transformed the research landscape for Duchenne Muscular Dystrophy, fostering a more inclusive and impactful approach to scientific inquiry.

Years active

28

Publications

72

PAG collaborations

8

Publications

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Projects

https://loremflickr.com/640/480/nature?lock=3859322995998720

Patient-Focused Research Participation for Duchenne Muscular Dystrophy

This project aims to involve patients directly in research activities for Duchenne Muscular Dystrophy, ensuring their voices are heard in the research process.